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+ Utilization & Outcomes
+ Patients' Stories
   - Keone Penn
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   - Jacyln Albanese
   - Anthony Dones
   - Heidi Tweten
   - Erik Haines


 

 

Erik Haines

In 2006, Erik's father writes: "Erik was the sixth person to receive a cord blood transplant from an unrelated donor in July of 1994. He was the first person to receive cord blood for a rare, inherited metabolic disease. In Erik's case, the disease was Globoid Cell Leukodystrophy, or Krabbe disease. Erik was diagnosed in early 1994 at the age of 2 during a "just in case" test shortly after his younger brother, Adam, was diagnosed with Krabbe.

"Adam was too symptomatic to be treated with a bone marrow transplant and he died shortly after turning 2. Erik was pre-symptomatic, but because Krabbe progresses so rapidly, it was felt he needed an immediate hematopoietic stem cell transplant to have any hope of saving his life. Registry searches did not turn up an acceptable bone marrow match, leaking Erik with no good options and the clock ticking. A search of the NY Blood Center's cord blood bank found a cord blood unit with match characteristics similar to the bone marrow match. Although few patients had received a cord blood transplant. Doctors felt that while not a perfect match, the cord blood match would work for Erik because the transplant-related complications were thought to be much less with cord blood than with bone marrow. The cord blood also had the advantage of being available as soon as the doctors could ready Erik for transplant.

"Erik went through his transplant without major problems and left the University of Minnesota Hospital in a then-record 26 days. Erik now leads a normal life. As a result of Erik's success, cord blood transplants are now an accepted treatment for children with inherited metabolic diseases.

"With no good marrow match available, an experimental cord blood transplant was Erik's only hope. Even then, his doctor, William Krivit, MD, told us that the Erik we sent to transplant would not be the same Erik we would get back after the transplant. Erik surpassed all expectations and thanks to God and cord blood, today Erik is a normal teen-ager enjoying a "normal" life."

 



Erik Haines was diagnosed with Krabbe Disease in 1994 and was the first patient to receive a cord blood transplant for this rare, inherited metabolic disease.

 

Cord blood is an investigational product not licensed by the FDA.